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September 2016

Global Genes 5th Annual RARE Patient Advocacy Summit

September 22, 2016 @ 7:00 am - September 23, 2016 @ 5:00 pm
Hyatt Regency Huntington Beach Resort and Spa, 21500 Pacific Coast Highway
Huntington Beach, CA 92648 United States
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A rare diagnosis changes everything. You weren’t given a playbook on how to cope, how to take that next step, and you certainly weren’t handed a blueprint on how to build an advocacy organization and successfully bring a therapy to market.

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Rare Disease Market Access and Orphan Drug Commercialization

September 29, 2016 - September 30, 2016
Hyatt Regency Boston, 1 Ave de Lafayette
Boston, MA 02111 United States
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Join market access and commercialization executives from pharmaceutical and biotech companies with a focus on rare, genetic, and orphan diseases to explore the current commercial dynamics surrounding these unique products.

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October 2016

NORD Rare Summit

October 17, 2016 - October 18, 2016
Hyatt Regency Crystal City, 2799 Jefferson Davis Hwy
Arlington, VA United States
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Rare Diseases and Orphan Products Breakthrough Summit NORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multi-stakeholder event of its kind – historically featuring over…

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World Congress on Patient Advocacy

October 27, 2016 @ 8:00 am - October 28, 2016 @ 5:00 pm
Hyatt Arlington, 1325 Wilson Blvd
Arlington, VA 22209 United States
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Pharmaceutical and biotech companies all believe in representing the patient voice within the company.

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November 2016

World Orphan Drug Congress Europe

November 15, 2016 @ 8:00 am - November 17, 2016 @ 5:00 pm
Sheraton Brussels Airport Hotel, 1930 Brussels
Brussels, Belgium
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The World Orphan Drug Congress is entering into its 7th year in November 2016. The Congress was one of the first events to bring together the full range of stakeholders…

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December 2016

Genetic RX Boston

December 8, 2016 @ 7:00 am - 6:30 pm
Joseph B. Martin Conference Center, 77 Avenue Louis Pasteur
Boston, MA 02115 United States
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Genetic Rx will take place at Harvard Medical School and will bring together academics, key industry leaders and investors to discuss the emergence of new genetic medicines as well as…

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April 2017

World Orphan Drug Congress USA

April 19, 2017 @ 8:00 am - April 21, 2017 @ 5:00 pm
Washington, D.C., WA United States + Google Map
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October 2018

Global Genes 2018 RARE Patient Advocacy Summit

October 3, 2018 @ 6:30 am - October 4, 2018 @ 10:00 pm
Hotel Irvine, 17900 Jamboree Road
Irvine, CA 92614 United States
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The RARE Patient Advocacy Summit is the can’t-miss event of the year for rare disease stakeholders. The Summit will take place October 3-4 at the Hotel Irvine in Irvine, California,…

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April 2019

Engage Health to Appear at the World Orphan Drug Congress USA 2019

April 10, 2019 @ 9:00 am - 12:00 pm
Gaylord National Harbor Hotel, 201 Waterfront St
National Harbor, MD 20745 United States

On Wednesday, April 10, 2019, Engage Health will host a workshop on Identifying and Engaging Patients and Clinicians in the Rare Disease Space as part of the World Orphan Drug…

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MME and LapidusData to Lead Workshop at WODC

April 10, 2019 @ 1:00 pm - 5:00 pm
Gaylord National Harbor Hotel, 201 Waterfront St
National Harbor, MD 20745 United States

On Wednesday, April 10, 2019, MME and LapidusData will host a workshop on Predicting and Influencing the Market Potential of Orphan Drugs and Gene Therapies as part of the World Orphan…

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