Website Privacy and Data Collection/Storage Policies

The Rare Collective® respects the privacy of its customers, visitors to its website and others.

The Rare Collective has a legitimate interest in collecting personally identifiable data (including, but not necessarily limited to, your name, address, telephone number, and email address) when you voluntarily submit such information to us for the purposes of business inquiries, accessing website content, to register for certain events, or other purposes.

How Used

The Rare Collective maintains the personal information that you voluntarily submit in an electronic database. The Rare Collective may use this information as a means to contact you to obtain additional information, register your participation in a meeting or event, provide you with information that you have requested, or additional information which the Rare Collective believes may be of interest to you.

Any personally identifiable data collected by the Rare Collective may be used by the Rare Collective, or by a third party individual or its agent, for processing, communications, logistics, and for other purposes as appropriate. Personally identifiable information will be shared on a need-to-know basis and agents of the Rare Collective who have access to this information are required to protect this information in a manner that is consistent with this Privacy Notice. Additionally, agents will not use this information for any purpose other than to carry out the services they are performing for the Rare Collective or its members.

Data Storage

The Rare Collective processes and stores encrypted data on its third-party servers (WP Engine) in the United States of America (the “U.S.”) and will therefore transfer personal data within the U.S.. The Rare Collective may transfer data to the encrypted servers of its member companies in order to conduct its business. This data will be encrypted both in transit and at rest. For additional information about protections offered by WP Engine, please see their Security Environment document at https://wpengine.com/support/wp-engines-security-environment/.

The Rare Collective may use agents to access, collect, record, process and use personal data as required for, and in compliance with, the purpose of each project. Agents will perform such activities exclusively upon, and in strict compliance with, The Rare Collective’s written policies and the terms of appropriate consents. Upon request, we will provide you with the names and addresses of such agents.

While the Rare Collective makes every reasonable effort to stay current with the latest security standards to protect the information it collects, please be aware there is always some risk involved when submitting data over the internet. Although we will put every possible effort in securing out properties we cannot always guarantee that our RSVP sites, survey site, website and servers are 100% safe from illegal tampering or “hacking.” Any data transmitted over the internet may be at risk, however, once it is received at the Rare Collective and entered into our database, any data you have submitted has the same protection that the Rare Collective extends to its own confidential information. All of our input forms asking for PII data will be protected by modern security standards.

Due to the nature of pharmaceutical market research, unless your consent is retracted and you request to have your personal data deleted, The Rare Collective will keep personal data stored securely indefinitely.

Cookies

We use a technology called cookies on our website to improve our service and to track the pages visited. Using cookies to track page visits helps us analyze our site usage more accurately.

We may track the total number of visitors to our website, the number of visitors to each page of our website, the sequence or duration of visitors to each page, IP addresses, and the domain names of our users Internet Services Providers, and we may analyze these data for trends and statistics in the aggregate, but such information will be in aggregate form only and it will not contain personally identifiable data. Aggregate information is not linked to any personally identifiable information that can identify any individual.

Links to Third Party Sites

As a convenience to our visitors, our sites currently contain links to a number of other (non- Rare Collective) sites that we believe may offer useful information. Such links do not constitute an endorsement by the Rare Collective of those other websites, the content displayed therein, or the persons or entities associated therewith. The Privacy Notice presented here does not apply to those sites. You should contact those sites directly for information on their privacy policies, confidentiality agreements, and data collection/distribution procedures.

Complete Agreement and the Privacy and Data Collection and Storage Policies, and Website Use Notice

The Privacy and Data Storage Policies Notice and the Terms of Use of the Website constitute the complete agreement between the parties with respect to their subject matter and supersede any prior agreement or communication. The Rare Collective reserves the right to modify their policies at any time. In the event The Rare Collective updates or modifies this Privacy Notice, The Rare Collective shall endeavor to post such updates or modifications on this website for a period of thirty (30) days following any such modifications. Therefore, you are advised to view this Privacy Notice occasionally, or at least every thirty (30) days. Your continued use of this website subsequent to the Rare Collective notice of modification of this Privacy and Data Storage Policies Notice shall constitute your acceptance of the modified Privacy and Data Storage Policies Notices and the Terms of Use of the website.

Minors

The Rare Collective website is not directed to minor individuals who are under the age of thirteen (or under a higher age if permitted by the laws of their residence), and we request that they not provide personal data through this website. If it comes to our attention that we have collected personal data from a minor, we may delete this information without notice.
How to contact us:

If you have any questions, comments or concerns about how your personal information is handled on this Website, you may contact us at News@RareCollective.com.

If at any time you wish to stop receiving emails or other communications from us, or if you have submitted personally identifiable information through this website and would like to have that information deleted from our records, please notify us.

You may also request that we correct or amend your personal data by contacting us by email at News@RareCollective.com.