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X-WR-CALDESC:Events for Rare Collective
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DTSTART:20160101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20170419T080000
DTEND;TZID=UTC:20170421T170000
DTSTAMP:20260420T125434
CREATED:20160912T004923Z
LAST-MODIFIED:20160912T004923Z
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SUMMARY:World Orphan Drug Congress USA
DESCRIPTION:
URL:https://rarecollective.org/event/world-orphan-drug-congress-usa/
LOCATION:Washington\, D.C.\, WA\, United States
CATEGORIES:Attending
GEO:47.7510741;-120.7401386
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BEGIN:VEVENT
DTSTART;TZID=UTC:20161115T080000
DTEND;TZID=UTC:20161117T170000
DTSTAMP:20260420T125434
CREATED:20160912T004714Z
LAST-MODIFIED:20160912T004714Z
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SUMMARY:World Orphan Drug Congress Europe
DESCRIPTION:The World Orphan Drug Congress is entering into its 7th year in November 2016.\nThe Congress was one of the first events to bring together the full range of stakeholders and influencers in the orphan drug and rare disease sector\, from the pharma and biotechs to patient advocates and representatives from payers. \nIt continues to be a key meeting for the sector in pushing forward with strategy\, advocacy and partnering within the rare disease space.  \nBuilding on a greatly successful event in 2015\, we will be putting together a hard-hitting agenda in 2016. \nWe will continue to cover the issues that affect the full audience\, including pricing and reimbursement\, commercialisation\, and improving on collaboration\, as well as researching the newest areas to ensure the focussed content really reflects the future of the sector.  \nWe will also be working hard to increase the number of representatives present from the HTA\, payer and public health arenas\, as it is so important to have their input throughout the discussions onsite. Additionally\, we will be inviting more members of the patient advocacy community. \nWe believe these improvements to the programme will fulfil our aim to see 450+ attendees in 2016.
URL:https://rarecollective.org/event/world-orphan-drug-congress-europe/
LOCATION:Sheraton Brussels Airport Hotel\, 1930 Brussels\, Brussels\, Belgium
CATEGORIES:Attending
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BEGIN:VEVENT
DTSTART;TZID=UTC:20161027T080000
DTEND;TZID=UTC:20161028T170000
DTSTAMP:20260420T125434
CREATED:20161012T165918Z
LAST-MODIFIED:20161012T165918Z
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SUMMARY:World Congress on Patient Advocacy
DESCRIPTION:Pharmaceutical and biotech companies all believe in representing the patient voice within the company.\nThe challenge is how to make patient centricity an actuality within your organization. The paradigm shift in the healthcare industry to have a greater focus on the patient voice has created a need for industry organizations to ramp up their patient advocacy efforts to more successfully engage and empower what is most important; the patient. This summit brings together manufacturer and advocacy professionals to discuss how to most effectively engage the patient in drug development\, how to create successful partnerships\, and discusses strategies and results from successful case examples. \nTop Reasons To Attend: \n\n2015 Attendance Pie Chart\nDiscuss innovative tactics for involving patients from the initial stages of drug development through study launch\nDiscover how to translate a volunteer network into your organization’s stakeholder groups\nUnderstand the impact of ePatient communities on clinical trial participation\nDetermine how to more effectively capture the patient voice in policy\nLearn how to work in partnership with global patient advocates\nShow how to clarify your role to internal stakeholders when building an advocacy function\nDemonstrate how data transparency can help build trust and confidence in patients participating in clinical trials\nIdentify how to work in partnership with global patient advocates
URL:https://rarecollective.org/event/world-congress-patient-advocacy/
LOCATION:Hyatt Arlington\, 1325 Wilson Blvd\, Arlington\, VA\, 22209\, United States
CATEGORIES:Attending
GEO:38.8951425;-77.0727915
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Hyatt Arlington 1325 Wilson Blvd Arlington VA 22209 United States;X-APPLE-RADIUS=500;X-TITLE=1325 Wilson Blvd:geo:-77.0727915,38.8951425
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20161017
DTEND;VALUE=DATE:20161019
DTSTAMP:20260420T125434
CREATED:20160912T004242Z
LAST-MODIFIED:20160912T004242Z
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SUMMARY:NORD Rare Summit
DESCRIPTION:Rare Diseases and Orphan Products Breakthrough Summit\nNORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multi-stakeholder event of its kind – historically featuring over 20 speakers from the FDA\, participation from over 80 patient organizations and the Pharma/Biotech industry’s foremost experts in orphan product innovation\, investment and commercialization. \nThe 2016 Breakthrough Summit is your opportunity to collaborate with the top leaders from the FDA\, NIH\, industry\, patient groups\, payers and research institutions to address the progress and innovations in rare disease diagnosis\, treatment\, patient engagement and market access of orphan products. \nNew for 2016 \nNORD’s Conference networking app helps you and your colleagues see who’s attending and schedule one-on-one meetings in advance.  Plus\, roundtable discussions during Lunch & Learn sessions create opportunities for robust\, intimate discussions.
URL:https://rarecollective.org/event/nord-rare-summit/
LOCATION:Hyatt Regency Crystal City\, 2799 Jefferson Davis Hwy\, Arlington\, VA\, United States
CATEGORIES:Attending
GEO:38.8487231;-77.0516672
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Hyatt Regency Crystal City 2799 Jefferson Davis Hwy Arlington VA United States;X-APPLE-RADIUS=500;X-TITLE=2799 Jefferson Davis Hwy:geo:-77.0516672,38.8487231
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20160929
DTEND;VALUE=DATE:20161001
DTSTAMP:20260420T125434
CREATED:20160906T183659Z
LAST-MODIFIED:20160908T171416Z
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SUMMARY:Rare Disease Market Access and Orphan Drug Commercialization
DESCRIPTION:Join market access and commercialization executives from pharmaceutical and biotech companies with a focus on rare\, genetic\, and orphan diseases to explore the current commercial dynamics surrounding these unique products. This Summit evaluates market forces\, their economic impact\, and the implications for orphan drug market access – covering early stage commercialization efforts through pricing\, reimbursement\, and patient and market access considerations. \nTop Reasons to Attend: \n\nLearn strategies to enhance your patient-centered approach to product commercialization\nDiscuss lessons learned between industry and advocacy partnerships\nUnderstand key pricing models and how to develop a cost effectiveness model for your product\nGain insight from payers on how they manage orphan drug pricing and reimbursement and their perceptions on value in relation to price\nDive into the mechanics of lobbying in the rare disease space\nDetermine how to choose the right distribution model for market success
URL:https://rarecollective.org/event/rare-disease-market-access-and-orphan-drug-commercialization/
LOCATION:Hyatt Regency Boston\, 1 Ave de Lafayette\, Boston\, MA\, 02111\, United States
CATEGORIES:Attending
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