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X-WR-CALNAME:Rare Collective
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X-WR-CALDESC:Events for Rare Collective
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DTSTART:20180101T000000
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DTSTART;TZID=UTC:20181003T063000
DTEND;TZID=UTC:20181004T220000
DTSTAMP:20260429T154954
CREATED:20180928T133052Z
LAST-MODIFIED:20180928T133052Z
UID:390-1538548200-1538690400@rarecollective.org
SUMMARY:Global Genes 2018 RARE Patient Advocacy Summit
DESCRIPTION:The RARE Patient Advocacy Summit is the can’t-miss event of the year for rare disease stakeholders. The Summit will take place October 3-4 at the Hotel Irvine in Irvine\, California\, and is the largest gathering of rare disease patients\, advocates and thought leaders worldwide. \nTake advantage of this opportunity to connect and learn from more than 100 experts in rare disease leading educational sessions in four specialized learning tracks: \n\nLiving with a Life-Altering Condition\nArchitecting Your Disease Community\nPatients as Partners and Drivers\nScience and Technology Innovation\n\nThe RARE Patient Advocacy Summit offers many unique opportunities to support the rare community by participating in the largest educational event for rare patients and advocates. Join Global Genes\, partners and rare disease community members from all walks of life to become equipped with the tools needed to persevere and thrive on our paths forward!
URL:https://rarecollective.org/event/global-genes-2018-rare-patient-advocacy-summit/
LOCATION:Hotel Irvine\, 17900 Jamboree Road\, Irvine\, CA\, 92614\, United States
GEO:33.6777624;-117.8403925
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