Hyatt Regency Huntington Beach Resort and Spa

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Global Genes 5th Annual RARE Patient Advocacy Summit

Hyatt Regency Huntington Beach Resort and Spa 21500 Pacific Coast Highway, Huntington Beach, CA, United States

A rare diagnosis changes everything. You weren’t given a playbook on how to cope, how to take that next step, and you certainly weren’t handed a blueprint on how to build an advocacy organization and successfully bring a therapy to market.

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